Sunday, March 17, 2013

Huh? Another hiatus?


Just until the 20th

Wuzzup doc?  Almost 50kg in 1 year-at six foot?







If this happened to someone i knew even, i would be asking care providers: docs, etc, "What in God's name is going on here?"

I am tired most of theie garbage and some of those who said they "won't be anything left if the interference of others is not stopped.

Until then, I remain looking, but to the topic of pain management, I feel sort of compelled (to follow in other blogging) to say a few things,

One, not all CRPS patients are looking for opiates, pain medication-many for whatever reasons, personal or otherwise, refuse to take them.  For some the minimal relief offered is just enough for getting by.

For others, another way must be found-their lives depending on it-and as they would say, "In keeping what they have."

When others of us who have other types of pain in addition-I now also have:]

  • fibromyalgia: and gain a new appreciation for what people go through-and those with both, how hard each day will now be-but more than ever-how important it is to get there.
  • Other peripheral neuropathies
  • bone & joint pain,
  • osteoporosis with lumbar compression fractures.
  • A mouth of teeth, as disgusting as it sounds, because of Nausea, vomiting, and the combination of the 2 anticonvulsants which now may have perfect control of what goes on with brains, with CRPS is nothing. How do I get by.
On prayer.

I don't think my life has ever been free of some type of pain.

Some I best deal by simply taking what medicine my doctor prescribes.
The proverbial hot bath does help-throw in some  mineral oil some type of something that when soaking through the skin? Feels a bit sore at first, but eucalyptus for example-hey mix that with other things now available to some?

For others, that simply does not help and more aggressive measures have to be taken. As maybe a new direction to manage some of your pain.

But thinking through what is driving yourpain in the long run-it may mean hurting for a day or two which is an overwhelming thought--but there are tools to make use of.

And good friends to kid with you:

Or let you have your space.

Kat-I love ya, hon, love to Shea, and in the memory of :

Jennifer Shea McGee, click on that link, and pray for a special girl, and her Mom, who while Shea is at Peace and with Jesus, we don't all get there at the same time, and I hope Kat finds a way to touch her baby...


Thursday, March 14, 2013

INTRODUCTION:

I could sit and espouse the benefits of HBOT or known more commonly as Hyperbaric Oxygen Therapy, but the clinical applications in RSD/CRPS are different, yet similar.

Currently I am here though (at Virginia Mason, no other hospital I know of in the region (though the hospital is over fifty miles from home, varying servies-most CRPS patients in Western Washington can get is perhaps some nerve blocks; in my experience?

Not only were there complications almost straight off.

One, I pay is that they can at least begin well,with where I am at.

Presently I write (I m not listed in the patient directory for obvious reasons: I simply when sick and especially with other events in life) from VMMC, aka, Virginia Mason Medical Center: and though a very long way from my own place quite a bit north it's been well worth it all.

Although initially one hospitalist was I will simply say "ill-informed" or perhaps "presumptious" I feel that in exercising my rights as a patient to ask for someone else, though it meant that basically?

 I did have to "tough out" the first night: it won't be happening again.  The hospitalist I have now is a wonderful and compassionate person: and determined to get to the root of the problem: he did not view the use of THC as a part of my treatment as "illicit drug abuse" and given the amount of care I exercise in terms of use of even medical grade (MMJ) and agreed that even while here though I cannot "smoke" or have the dispensary (like that is happening in a hosptal: folks legalization is one thing: stupid is smoking anything in an environment while oxygen is running is entirely um skipping a few bricks in that load

And that is true enough.  So Marinol will be started after the gastric empty study: that is obviously something that is what must call a compromise.  And so discussion about possibly looking into trying what this hospital has (HBOT: hyperbaric oxygen therapy) and also that the "world class" hospital across the city that does nerve blocks (that nearly crippled me, and I haven't been able to walk properly since).

But that if you honestly think that you won't catch a load-even if you are a six-footer fighting to gain enough to hit the 140 mark; get a "normal BMI" so that you don't feel like a Barbie doll, or even worse: look like one?

Or a concentration camp survivor.  But good Lord, folks, how stupid: deny basic medical care based on a perfectly legal activity and then label the patient an illicit drug user, post freaking security outside their room-3 of them?  Uh, this is what I look like guys:

at home on 5 February 2013


That there is another treatment that could benefit-even in my own situation.  That I have failed all but the one treatment: save one that I have not tried: and that is this.

20:23
But given that I am a medical marijuana patient, have provided them with a card: it is again being assumed that I am "hiding" something from someone.  But the funny thing?  What is it they think that I am hiding?

There is NOTHING that I have hidden: they got an honest list of medications: I am cranky at times-but even with the obnoxious behavior that has gone on here-that considering that I am what?  So invested in whatever they think I am "up to?"  I guess I fail to understand how pain-relief.

Well, giving this one another try...IMO-Care in where I live? I wish-for but moving: a good start..
























Think.  Pray-and well, this tells us who IMO?  Truly heals: